About the research
Do you remember baby Pia? She suffered from the rare muscle disease AMS and the medicine to save her cost a whopping €1.9 million. If you were the Minister of Health, would you pay for Pia's medicine? Even if that meant there was no budget left for another medicine that might save 100 people? Alessandra Blonda (KU Leuven) tells you more about so-called orphan drugs, medicines for rare diseases.